Sorry to anyone who has been looking for updates. I've been neglectful in that area. It doesn't mean anything bad though. Just the opposite, everything has been going absolutely perfect! Julia is incredible! She came through surgery beautifully, on Wednesday morning they began accessing her ommaya to draw cerebral spinal fluid or CSF for preliminary testing. This involves sticking a needle through her skin into the ommaya & using a syringe to draw the fluid. I'm not sure I could sit still for them to do it on me but Julia sits as still as can be & takes it like it's nothing. I admire her strength.
This weekend we were able to come down to the Children's Inn. We sat this morning & watched the snowfall & the deer outside our patio again :) Tonight we will head back up to the hospital again to Skype with Jason & Rebecka while we watch the Super Bowl. We have a friendly rivalry going on, we are rooting on the local team "Go Ravens!" while they have claimed the 49ers. Whoever's team loses has to cook a full course meal for the others :)
Tomorrow morning Julia is set to receive the cyclodextrin for the first time. We are extremely excited about this, but also a teeny bit apprehensive. I know that God has her wrapped firmly in his arms though. Still it is the 1st time in the US that a child will receive this medicine directly to the brain.
I will be adding some recent picture later today so go check those out if you want on the family photos page. While it hasn't been all fun & games, we have managed to really make the most of our free time while here :)
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