This sucks :( We are trying to hang on & be upbeat but the truth of the matter is that over the last 2 months we've been here in Md more than home with family & Julia & I are both over it. Having said that Julia is still feeling great, no headaches, no fevers, nothing. She handles everything so well though, I don't think I would be as good a patient as she is :) The doctors have her on 2 different antibiotics, one she gets by iv every 12 hours, the other they inject right into her ommaya reservoir in her brain every 24 hours. As of this morning they are discussing adding a 3rd antibiotic she will be taking by mouth every 24 hours. They are not getting results as quickly as they would like out of the other two. They have been monitoring her white blood count & they expected to see it stay stable or go down, instead it keeps creeping up although very slowly. As of right now she will remain on the antibiotics until @ least Mar 5th with monitoring going on daily & possibly plans changing as well. If the antibiotics don't clear the bacteria to the doctors liking then they will consider removing her ommaya, which means another surgery :( Obviously this is not top choice as she needs the ommaya to continue in the clinical trial so if they remove it we would have to look @ placing another one @ some point in the future for her to continue in this trial, but every step between here & there just delays her getting her next dose of the trial medicine :( We need prayers that the antibiotics completely get rid of this bacteria so we can continue on in the trial without delays.
Mean while we have a lot of free time on our hands here. Today we are filling that time watching the Daytona 500 :)
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