Ok so I can finally share our big news & the decision we came to. It's scary but super exciting. In January Julia will start a clinical trial of a new medicine called cyclodextrin. It is going to require monthly 5 day visits to NIH in MD, so I am taking an intermittent leave of absence @ work. It is also going to require surgery (this is the scary part) to install a port in her brain called an ommaya reservoir that will be used to deliver the medicine. We have the utmost trust in the doctors & faith that God is in control. This gives us renewed hope for Julia's long term future.
Prayers would still be appreciated as we continue on this journey :)
No comments:
Post a Comment