Good news!

We finally got the good news we've been waiting for. Next week we get to go to Shands hospital in gainesville which is only a 45 minute drive from our house. We will be going there for the trial now instead of NIH in MD.  Our dosing schedule will change to every 2 weeks instead of every 4 but that still cuts our travel in by more than half. So excited to start this next chapter but we will miss all the doctors, nurses & friends we've met through the years. We will still go up to MD once a year for check ups but she will be getting the trial medicine @ Shands from now on.