We are A NIH right now for our 25th consecutive monthly visit. Crazy! What's even crazier is that this could possibly be our last visit for awhile. They are working on Phase 2 of the trial & when it gets up & running we will be going to Gainesville for the medicine & only coming to NIH yearly! Julia continues to do well, she had her first dose of 1200mg on Tues. She only had a slight affect on her hearing, & we are hopeful that it will bounce back. She is still in school full time when we are home & loves school! She's in the 10th grade & got A/B honor roll on her first progress report of the year. The picture above is of her most recent fishing trip with her Daddy & friends. The last time the guys went out without her they didn't catch anything & they told her daddy they wouldn't go again without her. I guess she really is their good luck charm because they had a good day with her on the boat :)
