Doing the Happy Dance!

Julia started High School last week. So far she is loving it!! Julia & I are @ NIH for our Aug visit. We actually got to come up a few days early this month to attend the wedding of my new sister-in-law. Kim was a beautiful bride & the wedding was beautiful too! We got to NIH Sunday morning  & we have had a lot of good news since we've been here. For starters, & probably the best news of all, NO More IV's!!!! We are so excited about this, Julia's arms were constantly in some state of bruising from all the IV's & blood draws. The other good news is that after our 1 year visit next month, our visits will be reduced to 2 days!!!! Also very exciting!!! I can't believe it's been a year since we started back in the trial, crazy to think we've been traveling back & forth for that long. We have met so many wonderful people in this last year & have made lifelong friends. Also I added a video below this post, Julia was asked to help some of the leadership team here @ The Children's Inn where we stay to do the Ice Bucket Challenge. Of course she was only happy to help, Julia had a lot of fun dumping that bucket of Ice water :) In the video she is 2nd from the left in the back row.