April Update

April's visit to NIH was pretty uneventful. Julia got her drug infusion & all was well. Time is flying by so fast I'm having difficulty keeping up, between challenges @ work & the everyday busyness of a household with 2 children in school. I can't believe we are closing in on the end of the school year so fast. Julia starts high school next year!!!! And now we are staring down our next trip to NIH. The good news is last month was our 6 month mark so there was extra testing & everything is showing Julia's condition to be stable :)