We had such a blast celebrating Jason's 40th birthday. His dad took him & his brother to drive a Lamborghini! The whole family went to watch & cheer them on & most of them ended up getting to ride too. Jason had his Julia's Journey shirt on & the guys that run the business asked about it. When he told them about Julia & NPC they asked if she wanted to go for a ride for free. Boy did she ever!!!!! She got about 5 laps around a closed course driven by a professional drift card driver. She had a blast & was smiling from ear to ear. If you ever want to drive a luxury car please check out Gotham Dream Cars. These guys were great & went out of their way to give Julia an awesome experience. We ended the day with some go cart racing @ an indoor track in Orlando. It was an awesome day!
Julia did awesome as usual during her LP. I wish I had 1/2 of her bravery. We had kind of a lazy day yesterday, just laying around afterwards, but as Dr. Porter says boring is good. Boring means there is nothing unexpected going on. Today we had a couple of blood draws but otherwise a lot of free time. We spent it hanging out with our friends & going to a Christmas party hosted @ the clinical center for the kids. Julia enjoyed it & got to see Santa Claus! He even had a huge gift bag for each child. It was really cool! :) We only have one more blood draw tomorrow & one Friday morning & then we fly home Friday evening.
We arrived this afternoon back @ NIH to a beautiful snowfall. The high today was 32! Julia will get dose # 4 Tuesday morning. She has informed us that she does not want to be fully sedated this time. I am excited about that. What it means is they will give her just a little something to relax her & then a local anesthetic. It also means that I get to be with her the whole time! Very exciting! Better go for now it's just about dinner time. Will update more later in the week :)
