Stay Focused

It's been difficult to stay focused this last week, so much is happening. On the bright side it's all good stuff. The Publix Niemann Pick awareness event was a success. We got a lot of brochures out there & made a lot of people aware of a disease most had never heard of. We also celebrated Julia's  12th birthday Wednesday & again on Sunday. She had a lot of friends & family over to play with & we had a bounce house in the backyard. It was a beautiful day. I was so glad to see her running around & enjoying her day, just like every 12 year old should. By the end of the day though she was definitely worn out. She went to bed @ 7pm!!!!!! We also went out to the Forest Eagles Event on Sat. They had a lot of people there enjoying the Chicken dinners & ribs as well as the yard sale. That event was also a success. We are so appreciative of the support we are receiving, so many people are reaching out to us & trying to help. It does get a little overwhelming though. So to anyone who has emailed or sent notes lately I am working on responding to them, it's just taking me a little longer than usual, please bear with me. Much love to everyone!!